Following my other Facebook announcements, there was a great outpouring of love and support, but also a good amount of confusion as to whether I was still pregnant or not, what was going to happen, etc. I then posted this to give a fuller explanation.
"I've realized that many of my FB friends are now confused about
what's going on with me and the baby, thinking I've miscarried. I did
not share the official diagnosis at the time I made the announcement
because it's honestly not something you want to go about googling.
There are many horrific images out there, many of babies who have been
I am still pregnant and the baby is still alive
and growing. While I am definitely at a higher risk of miscarrying than
average (all women are at some risk of miscarrying at any point in
their pregnancy), it is quite probable that the pregnancy will go full
term. It is only after the birth, after leaving the womb, that the baby
has a terminal diagnosis.
The official diagnosis is fetal
acrania, which is very similar to the more common anencephaly.
(Anencephaly is a neural tube defect like spina bifida is, acrania is
not.) Basically, there is no skull to protect the brain. For a more
detailed explanation, please see this website: http://karinneclaire.blogspot.com/p/what-is-acrania.html
us therefore come boldly to the throne of grace, that we may obtain
mercy and find grace to help in time of need." Hebrews 4:16
I currently have many friends who are pregnant or have newborns.
Please don't feel like you need to shield me from talking about these
things. While I can't predict how I will feel closer to my due date of
February 17th, right now it truly does not bother me or bring me greater
pain to enjoy your experiences and babies with you. I still enjoy
talking about pregnancy, birth, and breastfeeding, and have two
wonderful past experiences that I still like to talk about. As an
extrovert, it's extra important to my mental health (and to K &
T's!) that we still be able to get out and socialize and feel welcome
with our friends."