Lilypie - Personal pictureLilypie Angel and Memorial tickers

Sunday, August 19, 2012

A fuller explanation

Following my other Facebook announcements, there was a great outpouring of love and support, but also a good amount of confusion as to whether I was still pregnant or not, what was going to happen, etc.  I then posted this to give a fuller explanation.

"I've realized that many of my FB friends are now confused about what's going on with me and the baby, thinking I've miscarried.  I did not share the official diagnosis at the time I made the announcement because it's honestly not something you want to go about googling.  There are many horrific images out there, many of babies who have been aborted.

I am still pregnant and the baby is still alive and growing.  While I am definitely at a higher risk of miscarrying than average (all women are at some risk of miscarrying at any point in their pregnancy), it is quite probable that the pregnancy will go full term.  It is only after the birth, after leaving the womb, that the baby has a terminal diagnosis.

The official diagnosis is fetal acrania, which is very similar to the more common anencephaly.  (Anencephaly is a neural tube defect like spina bifida is, acrania is not.)  Basically, there is no skull to protect the brain.  For a more detailed explanation, please see this website:
  This family's story has many similarities to what we are facing.  Local friends might be familiar with Baby Rachel's Legacy:
"Let us therefore come boldly to the throne of grace, that we may obtain mercy and find grace to help in time of need."  Hebrews 4:16

Also, I currently have many friends who are pregnant or have newborns.  Please don't feel like you need to shield me from talking about these things.  While I can't predict how I will feel closer to my due date of February 17th, right now it truly does not bother me or bring me greater pain to enjoy your experiences and babies with you.  I still enjoy talking about pregnancy, birth, and breastfeeding, and have two wonderful past experiences that I still like to talk about.  As an extrovert, it's extra important to my mental health (and to K & T's!) that we still be able to get out and socialize and feel welcome with our friends."

No comments:

Post a Comment