There is not much to report about the weeks in between the diagnosis and our next ultrasound. My pregnancy is being followed the same as any other normal pregnancy, the only difference being that my medical providers are being especially accommodating of any wishes or preferences I might have.
Some people can find out a baby's gender as early as 13 weeks, but we did not think to ask and they didn't offer any info while we saw the MFM specialist. As the 20 week mark approached, I found myself nervous about scheduling it and having to "take the next step" in this pregnancy. Also, it was going to be very difficult to schedule an ultrasound when my husband could be there too, due to his traveling work schedule.
I did not want to go to my regular practice for such an important ultrasound, as the office is very busy and hectic. Instead I chose to go to a private boutique type setting that does 3D/4D imaging. I told the tech ahead of time about the diagnosis so that she would not be surprised by what we saw. Not only did she do the extra 3D/4D viewing for free, but she was able to fit us in on a Sunday afternoon so that dh could be there too. Finally on 11/18/12, when I was 27 weeks along, we found out we are having a girl! It was not possible to calculate a weight estimate, but her limbs and such measured closer to 25 weeks. This is on the small side but still within a normal realm. After having a 10lb and a 9lb4oz baby, small sounds great to me. All her other body parts like spine, organs, etc looked fine.